Road Trip for Dylan; Kaylan Going Tubeless....

Yesterday, we celebrated 3-months of life for Kaylan and Dylan. I think it has probably been the longest 3-month span in my entire life.  At no other time in my life have I had to juggle so much at the same time as I have over the last fourth-of-a-year.  It has been so crazy, and while I would not wish that anyone ever have to endure what we have over the last 90-days, given the chance to do it a different way, we would not change a thing.  Having said that, we definitely want to get our sweet Kaylan home and begin the next chapter of our life. Ninety days in the hospital is long enough!

Besides being the 9th anniversary of 9/11, it was also a big day for Big Dylan.  Jen took him out of town for his very first road trip (they went to East Texas for her cousin's baby shower).  He also went to church for his first time.  He did awesome with both.  He has demonstrated that he can handle an extended period in a car and he also proved he does very well in large crowds.  I wasn't sure how he would do at church, but given the fact so many people there have lifted him and Kaylan up in prayer, it was as if he was at complete peace.  He topped off his good day by sleeping 7 straight hours!  It's true, I actually got up twice to see if he was still breathing. 

Miss Kaylan, although now treated as lepper since being diagnosed with MRSA, also has had a good weekend. Despite having contracted the bacterial disease (NOT staph, just colonized MRSA), she continues to get bigger and stronger every day.  She has started to really get the swing of feeding and has taken all her bottles over the last 2-days.  She is still only getting 4 bottles a day, but that could increase in the next couple of days if she continues to suck down her food like she did this weekend.  They trialed her off of oxygen today.  We have been praying that she would do well and not have to come home on oxygen, but she showed she is not quite ready to kick the nasal cannula just yet.  They will probably try her off it again in a couple of days, so we will pray that her lungs can strengthen enough to graduate from oxygen assistance.  She now weighs 5lbs7.4oz!

Here is a couple of pics from the weekend...