Wednesday, June 30, 2010
Thanks to Nana for my first outfit shown here.
Tuesday, June 29, 2010
Our little Kaylan hit the one-and-a-half pound mark today. Her little belly is really big (for her) right now. The battle she is facing is that the CPAP tubes on her face blowing air into her lungs is filling her tummy up with air. They are increasing her feedings as well so she's full of milk and air and it's causing some stress on her tummy. She's not quite ready to come off of the CPAP (due to lung maturity). But, they are still increasing her feeds every 12 hours.
We're praying that she and Dylan can soon graduate from the CPAP tubes! It just blocks their faces and we barely know what they even look like without them.
Is it only Tuesday? My days and nights are really starting to run together. Still. one. day. at. a. time.
2 Timothy 1:7 "The Lord does not give us a spirit of fear, but one of love, power and self-control."
Monday, June 28, 2010
Here is a short clip of the little fatty...
Dylan is also progressing nicely. The nurses told us that when he is over 1500 grams, he can start wearing clothes. They weighed him tonight and he was weighing in at 1490, so he should be there tomorrow. I know Jen is chomping at the bit to go play dress-up with her sweet little Dylan doll, so it should be a good day for both of them tomorrow.
Sunday, June 27, 2010
I'm ready to take on Week 3. Here's a few pictures from today of me holding Kaylan plus a couple of other cute ones.
Saturday, June 26, 2010
As for positive strides today, both babies are off of back up respirators and both going up on their feedings. Kaylan's feedings will be increasing every 12 hours as long as she keeps tolerating it. Dylan is almost up to 1 full oz of milk with each feeding. He hit the 3 lb mark (again) today so he's very close to his birth weight again. Kaylan is 1 lb 5.5 oz today so she's still gaining. YAY! Kaylan still has an infection but her white blood cell numbers seem to be gravitating back towards the normal range. She will be on antibiotics for 7 days total.
We'll head back up tomorrow to spend another day talking, touching, praying, laughing and crying. Sometimes I don't feel strong enough to keep doing this day in and day out, but what other choice do I have? I'll keep taking it one day at a time.
Please pray for complete healing for our sweet little Kaylan. We want this infection to be cleared up and cleared out.
I was reminded tonight when listening to our pastor's sermon that our wavering faith does not mean God's faithfulness to us wavers. Thank God for that!
Friday, June 25, 2010
Wednesday, June 23, 2010
As expected, there will be good days and bad days for Dylan and Kaylan. While I wouldn't call today a bad day, I would say it was not great. Doctors are concerned that Kaylan has an infection. Her white blood cell count was very elevated which is an apparent indicator of infection. They drew blood cultures on her, however they will not know the results of that for 48 hours. Rather than waiting 48 hours, they went ahead and started her on some antibiotics. They will administer another dose at 18 hours and a 3rd dose at 36 hours. If the cultures show that she does not have an infection, they will stop the antibiotics and attribute the elevated white blood cells to stress. On a positive note, she seems to be having more regular um, err....poops. Yeah that's right...poops. Go Kaylan! Also, they increased her feedings to two cc's instead of 1.5 She appears to be tolerating the feeds well so far. Kaylan was not her usual wirey, fiesty self today. I am concerned that she might have the suspected infection just because she was so lathargic today.
As for Dylan, he threw up three times tonight. They lowered his feedings back down to 20 cc's and are feeding him slower now. Both babies are on back up respirators to help them with their bradys (episodes of stopped breathing). Dylan could have gotten sick because of the extra air in his tummy from the back up respirator. The doctors did an x-ray on his tummy but it came back fine. Praise the Lord! I did spend two hours kangarooing my sweet little Dylan today. We took a nice 2 hour nap together. I love holding him. Can't wait to hold Kaylan when she's ready.
I think I'm finding that when they have a good day, then I have a good day. When they don't, I don't. It's hard for me to see Kaylan not being herself and seeing sweet little Dylan spit up all his food. I know these things are bound to happen, but right now, it's hard for me process all the beeping monitors and heel pricks, labs, cultures and x-rays. So, when you pray for Dylan and Kaylan tonight, please say a prayer for their mommy too. I know it's probably harder for me watching it than it is for them.
Still trusting His plan and His faithfulness. Thanks for lifting up our family.
Tuesday, June 22, 2010
Holding our babies for the 1st time!
Sunday, June 20, 2010
Saturday, June 19, 2010
Friday, June 18, 2010
I have been thinking a lot today about this picture. We took it last night as it was the 1st day that either of has gotten to "hold" the babies. Kaylan was so sweet and just loved having the bright bili-lights off her for a few minutes.
But this picture really had me thinking. I don't want to speak for God, but at this time, I think this is the perfect example of how we are to Him. He has us in His hands. He is holding us. He looks at us with all our junk, all our "wires, tubes, and monitors". And while all we see is the uncomfortableness of these wires that are bothering us, He sees the big picture. He knows that we are going through all this crap to "grow" us and get us to a better place. He knows it is for our own good.
I wish so bad Kaylan and Dylan could understand that they are hooked up to all these things for there own good. I wish I could communicate some how that we are allowing them to go through this pain because we love them. We love them so much that we are willing to do anything for them to get them better, even if they may have to endure some temporary pain.
My prayer today is for the continued growth and strength of these babies. But I also want to thank God for letting me endure this "incubator" of life that I feel like I have been in over the last few months. I know I am in His hands and He truly wants the best for me, just as we do for Kaylan and Dylan.
'From the lips of children and infants you have ordained praise'
Thursday, June 17, 2010
Wednesday, June 16, 2010
Tuesday, June 15, 2010
As we're already discovering on this journey, even when there's good news, there may be other set backs along the way. Kaylan needed a blood transfusion this morning because her blood count was low. Apparently this is pretty "routine" (um, it's not routine to ME so it scared me to death!), but she's responding well to the donor blood, and I'm sure she'll need more transfusions throughout the course of her stay. Doctors ran a head scan on her earlier this afternoon to see if there was any bleeding in the brain....Again, this test came back NORMAL! Another PRAISE! We are on our knees battling for these babies and God has been and continues to be FAITHFUL!
Dylan came off of his photo therapy lights today (sun tanning bed as I call it). His coloring is looking better and he's starting to respond better to the milk feeds. Keep rockin' Dylan!
With Father's Day approaching this weekend, we're hoping that maybe we can hold one of them for the first time. I would LOVE for Landon to be able to hold one or both babies on that special day. He's already an awesome daddy. He's so diligent to pray for them and over their little beds each night. He did another diaper change today on Dylan so he's getting to be a pro now.
Once we got home this afternoon, I got to see their nursery furniture for the FIRST time! It was delivered to the house while I was on bed rest at the hospital. It's so beautiful and I can't wait to put everything all together (yes, when I'm feeling better MOM, I know...)
My mom came over and dropped off ALL the gifts we've received during the past few weeks and she brought food and took care of us this afternoon. It was awesome. At about 6:30 this evening, we decided to go back to the hospital to see the babies. We just had to go back. We prayed again over them and spent some more time just staring at them. It's been an emotional day today (the first of many, I'm sure), but I really did sense God's presence with me all day and carrying us through this.
We will continue to trust. Thank you for the continued prayers. Here's a list of nurses that have managed Dylan and Kaylan's care so far. If you think of it, please pray for these nurses and doctors by name and ask God to give them extra blessings and wisdom as they manage their care as well as other babies in the NICU. I'm sure this list will grow.
Rebecca (she has twins AND she's a Red Raider alum - we LOVE her)
PS Praise on Skyler Seidman - for those of you following updates on Skyler, he's being sent home tomorrow! Woo hoo! He's been feeling better and was in the hospital for 16 days (I can relate, buddy).
Monday, June 14, 2010
Today, I changed my first diaper...EVER! I was terrified to even try because the babies are SO small, but our nurse, who by the way is so awesome, encouraged me to give it a shot. She told me I could do it and walked me through it. I choked about half way through and started to tense-up, she helped finish it up. But later, I went back and tried it again, and I nailed it.
Not only did I master the art of changing the diaper, both babies were doing rather well. They have both lost weight since their birth, however, the nurse told me tonight that is a good thing. So after about 7-days of either losing weight or no gain, they should start to take off. We are excited about their daily reports, especially when the news is pretty good. Kaylan had an X-ray this morning and the doctor said he did not see anything that looked to be a cause for concern. Praise God for that.
Another reason this day was so great was the visitors! OMG, we had so many people come to see us and our little angels. Today, Dylan and Kaylan met their Spear One family, their Nissan family, some of their church family, and more of their family-family! Not only have we had an incredible amount of people already come up here or send their support in other ways, but today, I got to show off the fruits of so many of their diligent prayers. I was so excited to show off both babies. Most people had never seen a 1-pound baby, and everyone seemed to agree that Dylan was going to grow to be a huge monster. He has the biggest feet. And you know what they say about men who have big feet??? (They wear big shoes - c'mon what were you thinking?)
We want to thank everyone that has shown support to us. Every blog comment, every visit, every text message, every Facebook note, every email, every gift sent, every letter in the mail, all the way to every prayer said mean so much to us and has really sustained us over the past few weeks. We know that the road ahead is very long, bumpy and unpredictable, but for now, we want to say thanks!! Please be in prayer for us tomorrow as we have to say a temporary good bye to our sweet babies. We spent some sweet time this evening praying over their little cubbies. I'm sure there will be many more hours spent in prayer over these little ones.
Sunday, June 13, 2010
My mom stayed with me last night. We had a good night of rest without the joy of IV's, epidurals and drips beeping in my ear all night. My mom has been so amazing during this time. She has been the perfect amount of available. We're so thankful for all that both our parents have done for us. They've been so diligent in prayers and support and we've been able to be their kids and let them love on us as we take on this new role of being parents. It's been a really special time. Landon's parents came in town Friday and will be leaving tomorrow. They were able to visit a few times and see their new little grandbabies. So glad they were able to be here.
Today was the first day I think I let my guard down a little bit and let the tears flow some. I think I've been "on" since Friday and it felt good to just let Landon hold me and cry on his shoulder for awhile tonight. Now the emotional seal has been broken and the tears are flowing a little more often - but it feels good to get it out. I'm getting nervous about being discharged on Tuesday. I know that will be a really difficult time to leave our babies here. My head knows that they are in the right place, well taken care of and that they are in the best care possible. My heart is a little slower to accept that rationale.
I know so many of you have been invested in our babies and we can't wait for the world to meet them! Please continue to pray for us and the babies. As we approach Tuesday (discharge day), please pray for extra peace for us as we leave this hospital empty handed.
I cannot continue to express how thankful we are for all the support we've received. There had to have been at least 35 people up here on Friday just waiting for their arrival. Unbelievable!
Landon and I are going to spend some time on our knees tonight for our little ones. Hope you'll do the same :) Love to you all.
Jen, Landon, Dylan and Kaylan ;)
Saturday, June 12, 2010
And while I am so happy, I cannot stop questioning "what if?" What if God had decided to take one of these angels? What if God's plan was different than ours and had different plans for one, or both of these babies? What if things had turned out differently?
Now, I know we have been given 2 miracle babies. Praise God for that! He has blessed us beyond belief. He has been so faithful. But, could I sit here and say how incredible God has been in this process, if His plans did not line up with our plans? A few years ago, before God started really working in me, I would have to admit my faith was in getting what I asked for. If I did not get what I prayed for, either I was doing something wrong, or God wasn't the all-good, all-powerful that He claims to be. He has graciously stretched and grown me to a point that my faith is now in HIM, and not in the outcome. That is a difficult place to get to, but it is such an amazing place. I can honestly say that if things would have turned out different, my faith would only have been rattled, not destroyed.
Friday, June 11, 2010
Kaylan Grace Fariss
weighing in at 1-pound even and 11 inches.
Dylan Cash Fariss
Weighing in at 3lbs 3oz and 16 inches!
Praise God for these precious miracles!