Welcome

THIS IS THE REAL LIFE DOCUMENTARY OF....

Faith and Fear...

Trust and Doubt...

Ups and Downs...

A God that still performs miracles...

A 1-pound baby girl and 3-pound baby boy...

This is our story; this is our life.

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In the race of life, God our heavenly Father has come alongside us through the person of the Holy Spirit. And

~when we think we can't go one more step,

~when the race becomes painful beyond endurance,

~when our hearts feel heavy,

~when our minds become dull,

~when our spirits are burned out,

we have the comforter who comes alongside us, puts His everlasting arms around us, and gently walks with us.

Sunday, September 26, 2010

Sooooo close....

Wow - what an AMAZING turn of events in the last 72 hours for Kaylan. It's been an emotional weekend! Kaylan had a second swallow study on Friday. It was determined that she has been aspirating on the half nectar thickener....thus causing the "wet" lungs and also causing difficulty in breathing. She's now on nectar and a half (think syrup in your milk) and that seems to be the magic potion. Since she's now on this thicker thickener, she is OFF OXYGEN --- that's right...NO OXYGEN!!! She's been off of it since Saturday and doing great so far! We are praying that she has kicked the canula and will be coming home tube free!! She's also now taking 8 of 8 feeds via bottle. She pulled out her feeding tube tonight (I think she might be trying to tell us something) :-)

If all goes well, she should be home by the end of the week. I can't believe I'm actually writing that sentence....the doctors ordered the car seat study for her so that's one of the final steps before discharge. We are so excited we can hardly stand it. We know that we'll be trading one type of "hard" for another, but we will be so happy to be DONE WITH HOSPITALS...hopefully for GOOD!

Please be in prayer for these specific things this week:

1) Kaylan to continue feeding comfortably and complete bottles
2) for her oxygen and breathing to be managed without any assistance
3) for her to continue to grow and gain weight and develop appropriately

We are looking forward to posting some pictures of our babies together again instead of all these individual shots. Here's to hoping that the next blog post is called "Coming Home!"






5 comments:

Tianay said...

Such great news! Your babies are absolutely precious...prayers will continue to be lifted up for you all.

Anonymous said...

Hurry and get my baby girl home. Things are fixing to be different at your house. LOL Grandad

Whitney said...

You don't know me but I have been praying and crying with you from afar. I am so happy for your family and this good news! Prayers for a continued good week, good month, good year, and good life.

Anonymous said...

Yippie! This is the best news I have heard in a long time! What a change of events since we spoke on Friday! Can't wait for Thursday! Take a nap everyday until then!
Love,
Megan

Sarah Jane said...

I am doing Beth Moore's study on revelation and there is a verse that talks about our prayers waiting in a bowl next to the throne...he knows they are there but it is up to him when to answer them...ill send the verse to you...perfect timing!