I must say that things are starting off MUCH better this week than they did last week. Yesterday, Kaylan was extubated (breathing tube was removed)! So, she was intubated for only 1 week. Let's hope that she will not be taking that backwards step ever again. Also, they stopped her antibiotics so she doesn't have any IV's sticking in her. Yippie! She's back on her full feeds and she's tolerating it well so far. She's back on CPAP and they are weaning her down on lower and lower oxygen. So, she's made GREAT strides in just the first two days of this week. Her weight is up to 2.69 pounds. PLEASE continue to pray that she will have a healthy week this week and continue to move forward and not backward! So far, so good. We know how quickly things can change!
Dylan, not to be outdone by his little sister, is taking almost 6 bottles a day and is officially off the nasal canula, which means he is not on ANY oxygen. No more tubes in his face!!! He's sucking those bottles down left and right and I think he's about made up his mind that he's ready to get out of there. I think he's getting really close too!
While I'm so anxious and excited to get Dylan home, that day will be very bittersweet. We will rejoice in taking Dylan home, but will grieve over having to leave Kaylan behind for an extended stay in the NICU. We have no idea how much longer she will have to stay but she obviously has a lot of catching up to do. She's not even big enough to wear clothes yet. As we draw closer to bringing home our sweet baby boy, I'm going to go ahead and ask for prayers for us as we develop a new routine of trying to have Dylan at home and manage making trips to the hospital to see Kaylan. The tentative plan is for us to alternate every other day/night to see Kaylan while the other stays home with Dylan. That sounds good, but I'm not sure I can just see Kaylan every other day/night. :( We will cross that bridge when we get there.
It may sound redundant, but we thank you so much for praying for us. We truly believe that prayer changes things. We could not go through this without your support.
Tuesday, July 27, 2010
Subscribe to:
Post Comments (Atom)
6 comments:
So excited to hear Kaylan is off ventilator...we have been praying a LOT for that to happen in this house. Preston will be glad to hear that too ;) We are going to CA this Fri. for a week, but I'd love to offer to help watch Dylan while you both go to the hospital...it could work :)
Sorry, that was from me, Kim Johnson(I wasn't trying to be mysterious) I also wanted to add, only if you feel comfortable with that offer...:)
Yea God! Covering you in prayer!
What wonderful news to read! All news, good or bad, brings its own set of new worries and prayers. They have both already come so far. More people hear about them all the time, and I've yet to see a person not be completely amazed and heartened by their story. I'm sure you're looking forward to the day when you can tell a story about them, and people say, "oh man, been there," instead of gaping at you and saying, "good gracious, how are you holding up?" I'm praying for those days to come sooner rather than later. Love you guys!
Eat your heart out, friends and family!! Landon let me go to the hospital and feed Dylan a bottle last night. It was the neatest thing--and to see him without all those tubes on his little face. He'a a doll! He ate and burped, ate and burped--and then slept. And Kaylan was wide-eyed after touch time with Landon, just looking around. She's filling out. It is such a blessing to see her feeling better and know that God is right there with her through it all. Keep lifting her up in prayer since she has a long way to go. (Dylan,too)
I also would be happy to stay with Dylan while you both go to the hospital.
Bittersweet sounds like the perfect description for the blessing of bringing Dylan home. We feel it too!
Continuing to pray! It was good to see you guys at church last Sunday!
Gina
Post a Comment