This morning, the nurse wheeled us down for our daily sonogram a little bit earlier that usual. Kaylan wasn't ready for the sonogram because she was still sound asleep. The doctor wanted to see her up and moving around so he pulled a "mini-taser" from his pocket and zapped Jen's belly. You could see the lines going through her head on the monitor and then she gave a big yawn and a sleepy neck stretch. The doctor caught it on DVD as you can see below...
We enjoyed seeing that. We also wanted to give people a glimpse of the beautiful angel that they are praying for.
She seems to wake up easier and in a much better mood than her mother. Aside from that, blood flow was back to being intermittently absent today, but not too concerning. Everything else looked fairly stable.
The doctors are still scratching their head as to why Kaylan hasn't and isn't growing. The fact of the matter is, they just don't know for sure. Today, Dr. Gore presented the possibility that their may be some sort of chromosomal issue (Downs Syndrome, Trisomy 18, Trisomy 13...) The doctor was not trying to scare us, but he did make us aware that Trisomy 18 and Trisomy 13 are fatal, so if she does have one of these abnormalities, at best she will only live a few hours to a few days outside the womb. He did say, however, that he does not currently see any other "red flags" or abnormalities in Kaylan, that are consistent with babies with these issues. Not to say we are in the clear, but the doctor is not seeing any. Bottom line, there could be a thousand reasons she is not growing and they really just don't know for sure.
So tomorrow, amidst all or our persistent praying, petitioning and pleading for God to sustain this pregnancy, we pause to Praise Him for a prolonged stay in populating Plano Presbyterian! (Now how's THAT for alliteration?)
10 comments:
Sweetest little yawn EVER! Hang in there-28 weeks is HUGE! I am so proud of you and those sweet little babies! Put signs up-balloons-streamers-whatever you have to do to celebrate tomorrow! 28 weeks - keep it up!!!!
Jo Ann called me last night and said that was so cute. She could see it right off. Have a perfect day for this 28 wk. milestone! I'm praying for 34 weeks (July 15th, I think.) Love you.
Maco
Hello, your post with trisomy just came in on my Google alert for Trisomy 13.
Ah.. yet another Doctor passing on MIS-information.. You state:
"The doctor was not trying to scare us, but he did make us aware that Trisomy 18 and Trisomy 13 are fatal, so if she does have one of these abnormalities, at best she will only live a few hours to a few days outside the womb."
This is outdated and Mis-information... In 2004 families came together to share.. SOME SURVIVE...There are many many survivors.. my child is now almost 10 yrs.
On the 'Living with Trisomy 13' website there are over 300 amazing family stories.. and close to 100 'Survivors Living' presently, and that is only those who have shared on the site, globally, there are more.
http://livingwithtrisomy13.org
Please pass this information and support resource to your Doctors..and Professionals so they can allow other families have the current support resources. Thank you...
ThereseAnn, mom to Natalia, living with full trisomy 13
Jenn and Landon, we are praying for you!!! Stay strong and continue to rely on the Lord :) LOVE YOU ALL AND THOSE PRECIOUS BABIES!
Jennifer and Landon-All we need now is a miracle,and guess what? God is in that business. I am believeing in him for that very thing! Dad
Hey Jennifer,
I wanted to come by today, but both boys are sick:) again!!! The fun never ends so get ready. I wanted to share my blog with you that I had when I was on bed rest and throughout the first 5 months until Grady and Grayson both finally came home. Like you, I was so amazed at the outpour of love from people who genuinely cared. Here is the link to it if you want to read:
http://www.caringbridge.org/visit/laineyclark
Grayson had all the "red-flags" for chromosomal anomalies and the doctors were convinced that he had one of them, but all of his tests came back normal....after about a 3 month wait from Mayo Clinic. I think they just say this when they can't figure out what else is going on.
Keep Cookin!
Lainey
Jenner and Landon-As I watch the video of baby Kaylan yawning and stretching,I feel as though I could reach out and touch her.I think that is exactly what God is doing is reaching out his hands and touching her little body.Keep the faith.GOD WILL PREVAIL. Grandad 6-4-10
Landon!! your comment cracked me up. As a former roommate I concur that it appears Kaylan wakes up in a better mood than her sweet mom!! Just kidding Jen!
Actually the Jen I know woke up early Saturdays to clean our dorm room!! Who does that!!
Post a Comment